Depistage Genetique Et La Vie Privee

This report gives a simplified description of the scientific fundamentals of genetic testing and describes its present applications; establishes broad privacy principles to guide both the public and private sectors on testing matters; examines specifically how the Privacy Act regulates genetic testing by government institutions; and addresses the growing need to consider regulating private sector genetic testing. A summary of positions taken by other countries and international organizations on privacy and genetic testing is also included.

La recherche en génétique nous permet actuellement d'élucider les mystères de la maladie de Huntington, du cancer du sein, de la maladie de Tay Sachs et de certains troubles mentaux. [...] Comme le souligne Eugene Oscapella dans son rapport « La génétique, la protection des renseignements personnels et la discrimination », la question de la protection de la vie privée est un point que les chercheurs et les décisionnaires ne peuvent négliger qu'à leur propre péril : L'utilisation éventuelle de l'information génétique personnelle au détriment des personnes peut, de façon tout à fait j [...] Ce mode de fonctionnement, qui rend l'entreposage beaucoup plus simple, a ouvert de tout nouveaux champs de recherche et aussi relancé un débat qui mûrit depuis longtemps au sujet d'une gamme de questions axées sur la protection de la vie privée et de la confidentialité, le recrutement des donneurs d'ADN et le consentement éclairé, la discrimination, la commercialisation et la régie. [...] Dans le contexte de la génétique, toute réglementation ou mesure législative devra tenir compte de la difficulté de définir ce que sont exactement les renseignements génétiques et de trouver les moyens de distinguer, dans les faits et en principe, les différents types de données génétiques. [...] PROTÉGER LA VIE PRIVÉE À L'ÈRE DES RENSEIGNEMENTS GÉNÉTIQUES 12 VOLUME, DÉTAIL ET RAPIDITÉ : LES DÉFIS DU RENSEIGNEMENT GÉNÉTIQUE limites ne devraient pas viser uniquement les tests présymptomatiques et laisser de côté les tests de susceptibilité et les enjeux venus de l'avènement de la pharmacogénomique.

CONTENTS.

This volume examines the impact of advances in genetics and assisted reproduction technologies on family law, human rights and the rights of the child, including the effects of international treaties on national legislation. It surveys the theoretical, ethical and legal discussions with regard to biotechnology and family law issues and the search for a balance between safeguarding respect for human rights and fundamental freedoms and the need to ensure freedom of research. However, biotechnology impinges not only on isolated individuals and their rights, but also on unborn children, the family as a network of living relationships and the basic structure of any society, as well as the foundation of parentage and kinship, social organization as a whole and, finally, mankind itself. As the attention of the World turns to cloning, this book will contribute to the search for a balance between the rights and freedoms of born and yet to be born human beings and the quest for new technologies.

Genetic Testing and the Criminal Law is a unique international treatment of the dynamic and established criminal investigation technique of DNA testing. Gathering together expert practitioners, judges and researchers from twelve countries, each chapter deals with the specific criminal law of the jurisdiction in its interaction with the expanding use of DNA testing in criminal investigations and trials. The chapters cover the criminal law of the United Kingdom, Japan, Australia, Germany, New Zealand, Spain, South Africa, Canada, Italy, Finland, Argentina and Denmark, providing valuable accounts not only of the use of genetic testing in the criminal law, but also of the development of the law in these jurisdictions. No previous work has included such an extensive comparative study in this important area. Collectively, this book emphasizes the need for the law to respond to scientific developments thoughtfully and with a sensitive, well-reasoned approach to current concerns relating to the reliability of DNA evidence in criminal trials and the privacy and civil liberties issues surrounding the collection of DNA samples from individuals and their storage. This book is an invaluable reference for scholars, practitioners of criminal law and private international law, and students interested in this increasingly significant field of law.

The "European Yearbook promotes the scientific study of nineteen European supranational organisations and the Organisation for Economic Co-operation and Development (OECD). Each volume contains a detailed survey of the history, structure and yearly activities of each organisation and an up-to-date chart providing a clear overview of the member states of each organisation. Each volume contains a comprehensive bibliography covering the year's relevant publications.