Why Can't I Make People Understand? Discovering the Validation Those with Chronic Illness Seek and Why

Why Can't I Make People Understand? Discovering the Validation Those with Chronic Illness Seek and Why
Author: Lisa J. Copen
Publisher: Rest Ministries, Inc.
Total Pages: 144
Release: 2007-06
Genre: Chronic diseases
ISBN: 0971660042


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When living with a chronic illness, the feeling of No one gets it! can shift from an occasional fustration to a constant grievance, steering one's spiritual walk onto shaky ground. In Why Can't I Make People Undersatnd?, Lisa Copen, founder of rest Ministries, provides unique insight into why people crave the understanding of those around them when they are suffering with a chronic condition. This book reveals and adresses the hidden aggravations many chronically ill people deal with and answers tough questions: * How does your attitude affect wheather you get the understanding you seek or not? * Should you pray for others to change their attitude about your illness? * Why do some prayers get answered, but with poor results? * How should you respond when people say hurtful things about your chronic illness? * Is it okay to get mad at God and express your tree feelings? * How can your relationship with Christ help all of the above become less important?

It Is Well with My Soul

It Is Well with My Soul
Author: Shelly Beach
Publisher: Our Daily Bread Publishing
Total Pages: 319
Release: 2013-03-01
Genre: Religion
ISBN: 1572938528


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Living with chronic illness, growing older, or facing the end of life can be a frightening experience. It is Well with My Soul helps readers explore biblical perspectives on issues associated with some of life’s most difficult stages. Focusing on living life as a care receiver, this collection of short meditations helps enhance the reader’s understanding of God’s purposes in situations of suffering. With engaging narrative, personal experience stories, and the use of humor, the author encourages the reader to find hope in Jesus. This insightful devotional provides readers with scripturally integrated prayers, reflective questions, and space to journal.

Finding Joy with an Invisible Chronic Illness

Finding Joy with an Invisible Chronic Illness
Author: Christopher Martin
Publisher: Martin Family Bookstore
Total Pages: 200
Release: 2021-11-14
Genre: Young Adult Nonfiction
ISBN: 0990826961


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"Christopher does a brilliant job of explaining the tools for managing the social, spiritual, mental, and physical aspects of chronic illness. I loved that the book contains straightforward tips for patients, their caregivers, and loved ones. Every chapter includes useful advice." —Edith Wairimu, 5-Star Readers' Favorite Book Review Live your best life — even when your physical health crumbles. Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references. Ultimately, Finding Joy is an A-to-Z guide that critiques the literature and empowers the reader with: Positive psychology techniques. These range from self-compassion, positive reappraisal, positive self-talk, and pacing to positive thoughts, emotions, and behaviors such as optimism, humor, and volunteer work. Stress-reduction methods. These include tools such as mindfulness, breathing exercises, simplification, and (therapeutic) journaling. Proven therapies. Examples include cognitive behavior therapy (CBT), dialectical behavior therapy (DBT), and acceptance and commitment therapy (ACT). Effective communication strategies and their impact on relationships and even the ability to access quality healthcare. Numerous tips to both access and optimize your your experience with high quality healthcare. Important considerations for loved ones of the chronically ill, so they too can know how to best support their loved one and take care of themselves in the process. Lastly, consider using the workbook by Oak Tree Reading on Amazon to enhance your reading experience. This could be useful for solo readers or support groups. “This book offers great value for anyone with chronic illness as it contains clear, practical, and actionable insights and steps that can be naturally implemented into daily life. An engaging, easy, and helpful read. Highly recommended.” —Alla Bogdanova, MSc, MIM, co-founder and past president of the International Empty Nose Syndrome Association "Having known Chris for decades, I am beyond fortunate to have been privy to such a work that serves others by providing a timely message, a powerhouse of practical strategies, and invaluable guidance.” —Mark Montgomery, PhD, chief diversity officer, SUNY Polytechnic Institute, and founder and chair of Joseph’s Experience, Inc., an organization that assists children impacted by cancer and/or leukemia “I have had various invisible chronic illnesses for nearly forty years, but I was still able to find suggestions that will help me. So many of the things I have gone through are reflected in this book. I highly recommend this comprehensive book.” —Sue on Amazon.ca

Enabling people to live well

Enabling people to live well
Author: Vikki Entwistle
Publisher: The Health Foundation
Total Pages: 52
Release: 2013
Genre: Chronic diseases
ISBN: 1906461457


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Improving Diagnosis in Health Care

Improving Diagnosis in Health Care
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 473
Release: 2015-12-29
Genre: Medical
ISBN: 0309377722


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Getting the right diagnosis is a key aspect of health care - it provides an explanation of a patient's health problem and informs subsequent health care decisions. The diagnostic process is a complex, collaborative activity that involves clinical reasoning and information gathering to determine a patient's health problem. According to Improving Diagnosis in Health Care, diagnostic errors-inaccurate or delayed diagnoses-persist throughout all settings of care and continue to harm an unacceptable number of patients. It is likely that most people will experience at least one diagnostic error in their lifetime, sometimes with devastating consequences. Diagnostic errors may cause harm to patients by preventing or delaying appropriate treatment, providing unnecessary or harmful treatment, or resulting in psychological or financial repercussions. The committee concluded that improving the diagnostic process is not only possible, but also represents a moral, professional, and public health imperative. Improving Diagnosis in Health Care, a continuation of the landmark Institute of Medicine reports To Err Is Human (2000) and Crossing the Quality Chasm (2001), finds that diagnosis-and, in particular, the occurrence of diagnostic errorsâ€"has been largely unappreciated in efforts to improve the quality and safety of health care. Without a dedicated focus on improving diagnosis, diagnostic errors will likely worsen as the delivery of health care and the diagnostic process continue to increase in complexity. Just as the diagnostic process is a collaborative activity, improving diagnosis will require collaboration and a widespread commitment to change among health care professionals, health care organizations, patients and their families, researchers, and policy makers. The recommendations of Improving Diagnosis in Health Care contribute to the growing momentum for change in this crucial area of health care quality and safety.

Ending Discrimination Against People with Mental and Substance Use Disorders

Ending Discrimination Against People with Mental and Substance Use Disorders
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 171
Release: 2016-09-03
Genre: Social Science
ISBN: 0309439124


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Estimates indicate that as many as 1 in 4 Americans will experience a mental health problem or will misuse alcohol or drugs in their lifetimes. These disorders are among the most highly stigmatized health conditions in the United States, and they remain barriers to full participation in society in areas as basic as education, housing, and employment. Improving the lives of people with mental health and substance abuse disorders has been a priority in the United States for more than 50 years. The Community Mental Health Act of 1963 is considered a major turning point in America's efforts to improve behavioral healthcare. It ushered in an era of optimism and hope and laid the groundwork for the consumer movement and new models of recovery. The consumer movement gave voice to people with mental and substance use disorders and brought their perspectives and experience into national discussions about mental health. However over the same 50-year period, positive change in American public attitudes and beliefs about mental and substance use disorders has lagged behind these advances. Stigma is a complex social phenomenon based on a relationship between an attribute and a stereotype that assigns undesirable labels, qualities, and behaviors to a person with that attribute. Labeled individuals are then socially devalued, which leads to inequality and discrimination. This report contributes to national efforts to understand and change attitudes, beliefs and behaviors that can lead to stigma and discrimination. Changing stigma in a lasting way will require coordinated efforts, which are based on the best possible evidence, supported at the national level with multiyear funding, and planned and implemented by an effective coalition of representative stakeholders. Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change explores stigma and discrimination faced by individuals with mental or substance use disorders and recommends effective strategies for reducing stigma and encouraging people to seek treatment and other supportive services. It offers a set of conclusions and recommendations about successful stigma change strategies and the research needed to inform and evaluate these efforts in the United States.

Health Promotion in Health Care – Vital Theories and Research

Health Promotion in Health Care – Vital Theories and Research
Author: Gørill Haugan
Publisher: Springer Nature
Total Pages: 382
Release: 2021-03-11
Genre: Medical
ISBN: 3030631354


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This open access textbook represents a vital contribution to global health education, offering insights into health promotion as part of patient care for bachelor’s and master’s students in health care (nurses, occupational therapists, physiotherapists, radiotherapists, social care workers etc.) as well as health care professionals, and providing an overview of the field of health science and health promotion for PhD students and researchers. Written by leading experts from seven countries in Europe, America, Africa and Asia, it first discusses the theory of health promotion and vital concepts. It then presents updated evidence-based health promotion approaches in different populations (people with chronic diseases, cancer, heart failure, dementia, mental disorders, long-term ICU patients, elderly individuals, families with newborn babies, palliative care patients) and examines different health promotion approaches integrated into primary care services. This edited scientific anthology provides much-needed knowledge, translating research into guidelines for practice. Today’s medical approaches are highly developed; however, patients are human beings with a wholeness of body-mind-spirit. As such, providing high-quality and effective health care requires a holistic physical-psychological-social-spiritual model of health care is required. A great number of patients, both in hospitals and in primary health care, suffer from the lack of a holistic oriented health approach: Their condition is treated, but they feel scared, helpless and lonely. Health promotion focuses on improving people’s health in spite of illnesses. Accordingly, health care that supports/promotes patients’ health by identifying their health resources will result in better patient outcomes: shorter hospital stays, less re-hospitalization, being better able to cope at home and improved well-being, which in turn lead to lower health-care costs. This scientific anthology is the first of its kind, in that it connects health promotion with the salutogenic theory of health throughout the chapters. the authors here expand the understanding of health promotion beyond health protection and disease prevention. The book focuses on describing and explaining salutogenesis as an umbrella concept, not only as the key concept of sense of coherence.

Health Informatics - E-Book

Health Informatics - E-Book
Author: Lynda R Hardy
Publisher: Elsevier Health Sciences
Total Pages: 568
Release: 2022-12-02
Genre: Medical
ISBN: 0323846475


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Learn how information technology intersects with today’s health care! Health Informatics: An Interprofessional Approach, 3rd Edition, follows the tradition of expert informatics educators Ramona Nelson and Nancy Staggers with new lead author, Lynda R. Hardy, to prepare you for success in today’s technology-filled healthcare practice. Concise coverage includes information systems and applications, such as electronic health records, clinical decision support, telehealth, mHealth, ePatients, and social media tools, as well as system implementation. New to this edition are topics that include analytical approaches to health informatics, increased information on FHIR and SMART on FHIR, and the use of health informatics in pandemics. Chapters written by experts in the field provide the most current and accurate information on continually evolving subjects like evidence-based practice, EHRs, PHRs, mobile health, disaster recovery, and simulation. Objectives, key terms, and an abstract at the beginning of each chapter provide an overview of what each chapter will cover. Case studies and discussion questions at the end of each chapter encourage higher-level thinking that can be applied to real world experiences. Conclusion and Future Directions discussion at the end of each chapter reinforces topics and expands on how the topic will continue to evolve. Open-ended discussion questions at the end of each chapter enhance students’ understanding of the subject covered. mHealth chapter discusses all relevant aspects of mobile health, including global growth, new opportunities in underserved areas, governmental regulations on issues such as data leaking and mining, implications of patient-generated data, legal aspects of provider monitoring of patient-generated data, and increased responsibility by patients. Important content, including FDA- and state-based regulations, project management, big data, and governance models, prepares students for one of nursing’s key specialty areas. UPDATED! Chapters reflect the current and evolving practice of health informatics, using real-life healthcare examples to show how informatics applies to a wide range of topics and issues. NEW! Strategies to promote healthcare equality by freeing algorithms and decision-making from implicit and explicit bias are integrated where applicable. NEW! The latest AACN domains are incorporated throughout to support BSN, Master’s, and DNP programs. NEW! Greater emphasis on the digital patient and the partnerships involved, including decision-making.

Exploring the Role of Social Media in Health Promotion

Exploring the Role of Social Media in Health Promotion
Author: Michael Stellefson
Publisher: MDPI
Total Pages: 178
Release: 2020-06-18
Genre: Medical
ISBN: 303936328X


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The use of social media in public health education/promotion has been increasing due, in part, to its ability to remove physical access and geographical barriers for users. Specifically, social media provides an outlet to increase and promote translational health communication strategies and the effective dissemination of health information and data in ways that allow users to not only utilize, but also to create and share pertinent health information. Although social media applications in public health and health promotion have yielded success in terms of generating support structures and networks for effective health behavior change, there are challenges and complications associated with use of social media that also need to be addressed (e.g., managing misinformation, ensuring compliance with privacy protection regulations). This Special Issue aims to explore social media as a translational health promotion tool by bridging principles of health education and health communication. Broadly, this Special Issue is seeking original submissions that examine: (1) the method with which social media users access, negotiate, and create health information that is both actionable and impactful for diverse audiences; (2) strategies for overcoming challenges to using social media in health promotion; and (3) best practices for designing, implementing, and/or evaluating social media campaigns and forums in public health. Special interest will be given to innovative submissions that expand and build upon traditional health education approaches with health communication theories and models. Other manuscript types of interest include relevant position papers, brief reports, and commentaries.