The Complete Directory For People With Rare Disorders

This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR

This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR

This informative resource provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Thousands of hours of research have gone into this 2005/06 edition, hundreds of new entries have been added and thousands of enhancements have been made to existing entries. This widely-hailed directory is structured around the 90 most prevalent chronic illnesses - from Asthma to Cancer to Wilson's Disease - and provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic illness has its own chapter and contains a brief description in layman's language, followed by important resources for National & Local Organizations, State Agencies, Newsletters, Books & Periodicals, Libraries & Research Centers, Support Groups & Hotlines, Web Sites and much more. Two indexes provide quick access to this wealth of information: Entry Index and Geographic Index. This directory is an important resource for health care professionals, the collections of hospital and health care libraries, as well as an invaluable tool for people with a chronic illness and their support network.

NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.

The widely hailed Complete Directory for People with Chronic Illness, updated for 2000/01, is structured around the 80 most prevalent chronic illnesses - from Asthma to Cancer to Wilson's Disease, providing a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic condition contains a brief description of the illness in layman's language followed by National and Local Organizations, State Agencies, Newsletters, Research Centers, Hotlines, Books and Periodicals. Also provided are sections on General Resources, both Associations and Media, as well as chapters on Death and Bereavement and Wish Foundations. This directory makes it possible to provide comprehensive and critical information from just one source in just one stop. An Entry Name Index and a Geographic Index will quickly direct users to relevant information and support services. The Complete Directory for People with Chronic Illness is a necessary addition to any reference collection.