Reconstructing Illness

Serious illness and mortality, those most universal, unavoidable, and frightening of human experiences, are the focus of this pioneering study which has been hailed as a telling and provocative commentary on our times. As modern medicine has become more scientific and dispassionate, a new literary genre has emerged: pathography, the personal narrative concerning illness, treatment, and sometimes death. Hawkins's sensitive reading of numerous pathographies highlights the assumptions, attitudes, and myths that people bring to the medical encounter. One factor emerges again and again in these case studies: the tendency in contemporary medical practice to focus primarily not on the needs of the individual who is sick but on the condition that we call disease. Pathography allows the individual person a voice-one that asserts the importance of the experiential side of illness, and thus restores the feeling, thinking, experiencing human being to the center of the medical enterprise. Recommended for medical practitioners, the clergy, caregivers, students of popular culture, and the general reader, Reconstructing Illness demonstrates that only when we hear both the doctor's and the patient's voice will we have a medicine that is truly human.

Bondspeople who fled from slavery during and after the Civil War did not expect that their flight toward freedom would lead to sickness, disease, suffering, and death. But the war produced the largest biological crisis of the nineteenth century, and as historian Jim Downs reveals in this groundbreaking volume, it had deadly consequences for hundreds of thousands of freed people. In Sick from Freedom, Downs recovers the untold story of one of the bitterest ironies in American history--that the emancipation of the slaves, seen as one of the great turning points in U.S. history, had devastating consequences for innumerable freed people. Drawing on massive new research into the records of the Medical Division of the Freedmen's Bureau-a nascent national health system that cared for more than one million freed slaves-he shows how the collapse of the plantation economy released a plague of lethal diseases. With emancipation, African Americans seized the chance to move, migrating as never before. But in their journey to freedom, they also encountered yellow fever, smallpox, cholera, dysentery, malnutrition, and exposure. To address this crisis, the Medical Division hired more than 120 physicians, establishing some forty underfinanced and understaffed hospitals scattered throughout the South, largely in response to medical emergencies. Downs shows that the goal of the Medical Division was to promote a healthy workforce, an aim which often excluded a wide range of freedpeople, including women, the elderly, the physically disabled, and children. Downs concludes by tracing how the Reconstruction policy was then implemented in the American West, where it was disastrously applied to Native Americans. The widespread medical calamity sparked by emancipation is an overlooked episode of the Civil War and its aftermath, poignantly revealed in Sick from Freedom.

`The summaries of evidence have provided ready-made challenges to previously unquestioned medical options ... the book provides a challenging update on the nature of scientific inquiry.' - British Journal of Clinical Psychology Despite nearly one hundred years of research, very little progress has been achieved in the understanding of schizophrenic behaviour. There remains considerable uncertainty even about the fundamental features of the hypothesised illness. Reconstructing Schizophrenia subjects the difficult concept of schizophrenia to rigorous scientific, historical and sociological scrutiny. They ask why a biological defect has been assumed in the absence of hard evidence and look at what can be done psychologically to alleviate schizophrenic symptoms. Finally, they explore what new models and research strategies are required in order to understand schizophrenic behaviour. The result is a book that provides a distinctive and critical perspective on modern psychiatric theories and which demonstrates the severe limitations of an exclusively medical approach to understanding madness.

During several decades, syntactic reconstruction has been more or less regarded as a bootless and an unsuccessful venture, not least due to the heavy criticism in the 1970s from scholars like Watkins, Jeffers, Lightfoot, etc. This fallacious view culminated in Lightfoot’s (2002: 625) conclusion: “[i]f somebody thinks that they can reconstruct grammars more successfully and in more widespread fashion, let them tell us their methods and show us their results. Then we’ll eat the pudding.” This volume provides methods for the identification of i) cognates in syntax, and ii) the directionality of syntactic change, showcasing the results in the introduction and eight articles. These examples are offered as both tastier and also more nourishing than the pudding Lightfoot had in mind when discarding the viability of reconstructing syntax.

Looks at the contest to construct history, focusing on competing versions of Reconstruction history supported by different factions after the Civil War. The author analyzes how the ultimately dominant version of the history won credence and how that in

Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today

Few life occurrences shaped individual and collective identities within Victorian-era society as critically as witnessing or suffering from illness. The prevalence of illness narratives within late nineteenth-century popular culture was made manifest on the period’s British and American stages, where theatrical embodiments of illness were indisputable staples of actors’ repertoires. Playing Sick: Performances of Illness in the Age of Victorian Medicine reconstructs how actors embodied three of the era’s most provocative illnesses: tuberculosis, drug addiction, and mental illness. In placing performances of illness within wider medicocultural contexts, Meredith Conti analyzes how such depictions confirmed or resisted salient constructions of diseases and the diseased. Conti’s case studies, which range from Eleonora Duse’s portrayal of the consumptive courtesan Marguerite Gautier to Henry Irving’s performance of senile dementia in King Lear, help to illuminate the interdependence of medical science and theatre in constructing nineteenth-century illness narratives. Through reconstructing these performances, Conti isolates from the period’s acting practices a lexicon of embodied illness: a flexible set of physical and vocal techniques that performers employed to theatricalize the sick body. In an age when medical science encouraged a gradual decentering of the patient from their own diagnosis and treatment, late nineteenth-century performances of illness symbolically restored the sick to positions of visibility and consequence.

This compelling account of the author's experience with a chronic pain disorder and subsequent interaction with the American health care system goes to the heart of the workings of power and culture in the biomedical domain. It is a medical whodunit full of mysterious misdiagnosis, subtle power plays, and shrewd detective work. Setting a new standard for the practice of autoethnography, Susan Greenhalgh presents a case study of her intense encounter with an enthusiastic young specialist who, through creative interpretation of the diagnostic criteria for a newly emerging chronic disease, became convinced she had a painful, essentially untreatable, lifelong muscle condition called fibromyalgia. Greenhalgh traces the ruinous effects of this diagnosis on her inner world, bodily health, and overall well-being. Under the Medical Gaze serves as a powerful illustration of medicine's power to create and inflict suffering, to define disease and the self, and to manage relationships and lives. Greenhalgh ultimately learns that she had been misdiagnosed and begins the long process of undoing the physical and emotional damage brought about by her nearly catastrophic treatment. In considering how things could go so awry, she embarks on a cogent and powerful analysis of the sociopolitical sources of pain through feminist, cultural, and political understandings of the nature of medical discourse and practice in the United States. She develops fresh arguments about the power of medicine to medicalize our selves and lives, the seductions of medical science, and the deep, psychologically rooted difficulties women patients face in interactions with male physicians. In the end, Under the Medical Gaze goes beyond the critique of biomedicine to probe the social roots of chronic pain and therapeutic alternatives that rely on neither the body-cure of conventional medicine nor the mind-cure of some alternative medicines, but rather a broader set of strategies that address the sociopolitical sources of pain.

As the body politics of life writing in the United States change, illness and disability memoirs receive considerable attention. Although these narratives are framed by a lack of health, they abundantly present health and do so beyond its binary relationship to the pathological. This book departs from previous scholarship by bringing into focus the writers' representations of cure, recovery, and healing as well as their reluctance to bring closure to their narratives and align their stories with traditional notions of health. These memoirs thus partake in the construction of alternative narratives of illness and disability.