Participatory Health Through Social Media

Participatory Health through Social Media explores how traditional models of healthcare can be delivered differently through social media and online games, and how these technologies are changing the relationship between patients and healthcare professionals, as well as their impact on health behavior change. The book also examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection. Also looks into the opportunities and risks to record and analyze epidemiologically relevant data retrieved from the Internet, social media, sensor data, and other digital sources. The book encompasses topics such as patient empowerment, gamification and social games, and the relationships between social media, health behavior change, and health communication crisis during epidemics. Additionally, the book analyzes the possibilities of big data generated through social media. Authored by IMIA Social Media working group, this book is a valuable resource for healthcare researchers and professionals, as well as clinicians interested in using new media as part of their practice or research. Presents a multidisciplinary point of view providing the readers with a broader perspective Brings the latest case studies and technological advances in the area, supported by an active international community of members who actively work in this area Endorsed by IMIA Social Media workgroup, guaranteeing trustable information from the most relevant experts on the subject Examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection

This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.

"The everyday use of digital and social media platforms has major implications for the production, seeking, and sharing of health information, and raises important questions about the dynamics of health peer support, power relations, trust, privacy, and the quality of health information disseminated across these platforms. This book looks at the complex scenario of platforms, practices, and content of contemporary digital communication to map and interpret emerging forms of digitally enhanced health activism. Drawing on empirical research, the book provides a critical discussion of citizens' social media usage, from the rise of the e-patient; the emergence of digitally-driven forms of peer-to-peer health care on specialised and mainstream social media platforms; the intersection of mainstream and social media practices in the development of health public debate; the emergence of patient networks alongside patient organisations; and the most contemporary instances of digitally-enhanced and crowdsourced health activism"--

This textbook is a comprehensive guide for students interested in using participatory research to improve people’s health and well-being. It is especially designed for those working in the fields of health and social welfare who are embarking on participatory research for the first time. It covers all phases in participatory research from “getting started,” to “acting for change,” “continuing the journey” and “articulating impact.” Its unique format helps readers understand the essence of participatory research as a comprehensive approach for doing research which is underpinned by a set of fundamental values.The many real life examples of participatory research projects from around the world inspire readers to find creative ways to manage their own research while opening up new horizons in their work.

Digital Health: Mobile and Wearable Devices for Participatory Health Applications is a key reference for engineering and clinical professionals considering the development or implementation of mobile and wearable solutions in the healthcare domain. The book presents a comprehensive overview of devices and appropriateness for the respective applications. It also explores the ethical, privacy, and cybersecurity aspects inherent in networked and mobile technologies. It offers expert perspectives on various approaches to the implementation and integration of these devices and applications across all areas of healthcare. The book is designed with a multidisciplinary audience in mind; from software developers and biomedical engineers who are designing these devices to clinical professionals working with patients and engineers on device testing, human factors design, and user engagement/compliance. Presents an overview of important aspects of digital health, from patient privacy and data security to the development and implementation of networks, systems, and devices Provides a toolbox for stakeholders involved in the decision-making regarding the design, development, and implementation of mHealth solutions Offers case studies, key references, and insights from a wide range of global experts

The pervasiveness of social media in young people’s lives is widely acknowledged, yet there is little evidence-based understanding of the impacts of social media on young people’s health and wellbeing. Young People, Social Media and Health draws on novel research to understand, explain, and illustrate young people’s experiences of engagement with health-related social media; as well as the impacts they report on their health, wellbeing, and physical activity. Using empirical case studies, digital representations, and evidence from multi-sector and interdisciplinary stakeholders and academics, this volume identifies the opportunities and risk-related impacts of social media. Offering new theoretical insights and practical guidelines for educators, practitioners, parents/guardians, and policy makers; Young People, Social Media and Health will also appeal to students and researchers interested in fields such as Sociology of Sport, Youth Sports Development, Secondary Physical Education, and Media Effects.

Peer research is increasingly used in international academic, policy and practice environments. It engages members of a group or social network as trusted members of a research team working in communities and settings they are familiar with. Critics, however, point to methodological concerns with peer research. These include the extent to which peer researchers genuinely represent the populations under study; data confidentiality; the emotional burden of enquiring into sensitive issues peers may experience in their own lives; and the reliability and credibility of data collected by people who do not have academic training. The book seeks to counter the marginalisation of research experience and skills derived from close relationships with people and communities, while reflecting critically on the strengths and limitations of peer research. Chapters by a wide range of international contributors illustrate the potential of peer research to facilitate an in-depth understanding of health and social development issues and enhance policy and practice. This interdisciplinary book provides students and professionals working in health, social science and development studies with a thorough grounding in this new style of research. It will appeal to those interested in research and evaluation; sexual health and public health; mental health, disability and social care; gender and sexuality; conservation and environmental management; migration and citizenship studies; humanitarian issues; and international development.

Participatory health research (PHR) is an approach to the co-creation of new knowledge to improve health, health services, and systems, while addressing issues of equity, social justice, and self-determination. A key component of PHR is that it places its beneficiaries--those for whom the outcomes are intended--at the heart of all research decision-making. However, many, if not most, PHR projects are initiated by academic researchers, rather than by community, patients, or other members of the public. How then, is ownership of the research process transferred from outside academics to inside stakeholders? To observe and measure this transfer of ownership, we followed the trajectory of a community-based participatory intervention study aimed at increasing active transportation to school within an Indigenous community in Canada. Social network analysis (SNA) provides a set of tools for examining the way opinions, resources, knowledge, and behaviors spread within and between groups of interconnected individuals. SNA is particularly adept at identifying knowledge leadership within groups and tracking how this may shift over time and thus provides an excellent methodology for examining transfer of ownership in PHR. This study will introduce SNA and some key individual- and network-level measures that can help in the development, evaluation, and maintenance of participatory research processes. We will provide insight for choosing a design appropriate for your specific project; guidance for sampling, data collection, and analysis; and thoughts on strengthening your results and sharing your findings. Finally, we will briefly touch upon designing structural interventions to optimize how things spread through your network.

Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of ‘research informants’ do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges. The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.