Needs Assessment Of Informal Relative Caregivers And The Children In Their Care

The rapid growth of home health care has raised many unsolved issues and will have consequences that are far too broad for any one group to analyze in their entirety. Yet a major influence on the safety, quality, and effectiveness of home health care will be the set of issues encompassed by the field of human factors research-the discipline of applying what is known about human capabilities and limitations to the design of products, processes, systems, and work environments. To address these challenges, the National Research Council began a multidisciplinary study to examine a diverse range of behavioral and human factors issues resulting from the increasing migration of medical devices, technologies, and care practices into the home. Its goal is to lay the groundwork for a thorough integration of human factors research with the design and implementation of home health care devices, technologies, and practices. On October 1 and 2, 2009, a group of human factors and other experts met to consider a diverse range of behavioral and human factors issues associated with the increasing migration of medical devices, technologies, and care practices into the home. This book is a summary of that workshop, representing the culmination of the first phase of the study.

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Kinship care is part tradition and part social welfare policy. Tradition and Policy Perspectives in Kinship Care examines the balance of the two perspectives and presents current practice challenges of formal and informal kinship care. This important resource focuses on both the needs of the caregiver as well as the impact of kinship care on children. Public policy issues related to kinship care are discussed in detail. This insightful book explores this crucial issue through the lens of social workers who fully understand the strengths and challenges of kinship care. Tradition and Policy Perspectives in Kinship Care discusses this issue from both micro and macro levels, explaining the outcomes of kinship based on variables such as the youth’s and parent’s outlook for the future, performance in school, welfare reform, domestic violence, respite care, spirituality, and involvement of nonbiological relatives. The book then focuses on the subject of grandparents as caregivers, examining their coping resources, effectiveness of programs serving them, and recommended changes to services to enhance their well-being. Topics in Tradition and Policy Perspectives in Kinship Care include: study examining the future outlook in African American kinship care families the effect of family disruption on a child’s educational performance the impact of the Temporary Assistance to Need Families (TANF) legislation and future policy links between domestic violence and kinship care the role of spirituality and religion in kinship care a study on the needs of biological parents the impact of a grandparent’s parenting responsibilities on his or her psychological well-being intergenerational communication kinship care in public housing examination of the factors that influence kinship care provided by African American grandfathers AARP study of grandparents raising grandchildren in the District of Columbia the KinNET project funded by the Children’s Bureau for a national support network for kinship care providers Tradition and Policy Perspectives in Kinship Care is an invaluable resource for social workers, counselors, child welfare agency administrators and practitioners, educators, and graduate students.

This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Most children cannot imagine living without their parents; for some though, because of social instability, substance abuse, or parental neglect, life apart from their parents is the reality. When these children are cared for by a relative or a close family friend without the involvement of a child welfare agency, the family that is created is known as an informal kinship care family. Because of the fluid nature of these families, little is known about them, leaving this group disadvantaged and neglected by the health care community. After a reivew of the existing literature, observation of informal kinship care families, and conversations with informal kinship caregivers and children, a conceptual model is proposed to help identify the unique challenges of this neglected group and ensure the holistic and sustained well-being of the children and adults who make up the informal kinship care family. The proposed model uses Margaret Newman's Theory of Health as Expanding Consciousness and the strenghts of transcultural nursing to widen the definition of the patient and redefine health to include a holistic view. The key concepts of holism, relationship, hope, and transformation are explored and used to deepen the meaning of the model. After implementation and evaluation, the goal is that families cared for under the model will experience transformation and sustained well-being.

This scholarly book focuses on stroke in Africa. Stroke is a leading cause of disability among adults of all ages, contributing significantly to health care costs related to long term implications, particularly if rehabilitation is sub-optimal. Given the burden of stroke in Africa, there is a need for a book that focuses on functioning African stroke survivors and the implications for rehabilitation within the African context. In addition, there is a need to progress with contextualised, person-centred, evidence-based guidance for the rehabilitation of people with stroke in Africa, thereby enabling them to lead socially and economically meaningful lives. The research incorporated in the book used a range of primary and secondary methodological approaches (scoping reviews, systematic reviews, meta-analyses, descriptive studies, surveys, health economics, and clinical practice guideline methodology) to shed new insights into African-centred issues and strategies to optimise function post-stroke.