My Life Beyond Leukemia

The “My Life Beyond” graphic book series tells the true stories of Mayo Clinic patients. Featuring 36 beautiful, fully illustrated pages, this graphic novel shares the inspiring story of Rae Burremo’s experience with leukemia. After going through treatment for leukemia, Amy is used to visiting the hospital. As she falls asleep for another medical test, she suddenly finds herself on an adventure. With the help of a shrinking potion, other magic tools and some friends, she’s on a mission to help other kids face leukemia and its treatment. What is it really like to have this childhood cancer? Find out how Amy beats leukemia and discovers life beyond her illness. Children’s voices are rarely heard amid the complexity of modern medicine. That's why every story in the My Life Beyond series stems from the imagination and experience of a Mayo Clinic patient. The books were developed through collaboration between these patients, Mayo Clinic physicians and author-illustrator Hey Gee. Through this unique lens of inspiring real-life experiences, the series explores how children view illness, challenges and recovery. Leukemia is estimated to affect 1 in every 1000 children, but children’s voices and their experiences with this disease are rarely heard. Created through collaboration between pediatric patients, their doctors, and children’s author and illustrator Hey Gee, My Life Beyond Leukemia dives into the minds and imaginations of child patients at Mayo Clinic to explain how children experience illness, challenges, and recovery. The “My Life Beyond” graphic novel book series is published in collaboration with Fondation Ipsen.

"Tracy likes to draw, make movies and play, just like other kids. She also has autism spectrum disorder. This means she processes many everyday situations differently, such as making friends. Over time, she's learned tricks for communicationg and coping when things are hard for her. Follow along as Tracy gives a peek at what life is really like for someone living with autism and how she discovered life beyond this common disorder."--Provided by publisher.

Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including:•New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects.•Advice on how to cope with procedures, hospitalization, school, family, and financial issues.•Tips for forming a partnership with the medical team.•Poignant and practical stories from family members.•Updated resources for medical information, emotional support, and financial assistance.Parents who read this book will find understandable medical information and emotional support.

Journey Through a Turning Point is a cancer survivor's story of how his career as a biochemist and his life as a husband and father got affected. Dr. Gurdev S. Ghangas pulls no punches in describing the years of his fight against the deadly disease.

More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.

NEW YORK TIMES BESTSELLER • A searing, deeply moving memoir of illness and recovery that traces one young woman’s journey from diagnosis to remission to re-entry into “normal” life—from the author of the Life, Interrupted column in The New York Times ONE OF THE BEST BOOKS OF THE YEAR: The New York Times Book Review, The Washington Post, Bloomberg, The Rumpus, She Reads, Library Journal, Booklist • “I was immersed for the whole ride and would follow Jaouad anywhere. . . . Her writing restores the moon, lights the way as we learn to endure the unknown.”—Chanel Miller, The New York Times Book Review “Beautifully crafted . . . affecting . . . a transformative read . . . Jaouad’s insights about the self, connectedness, uncertainty and time speak to all of us.”—The Washington Post In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter “the real world.” She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone. It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times. When Jaouad finally walked out of the cancer ward—after countless rounds of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live. How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.

THE NEW YORK TIMES BESTSELLER! "I had the choice to come back ... or not. I chose to return when I realized that 'heaven' is a state, not a place" In this truly inspirational memoir, Anita Moorjani relates how, after fighting cancer for almost four years, her body began shutting down—overwhelmed by the malignant cells spreading throughout her system. As her organs failed, she entered into an extraordinary near-death experience where she realized her inherent worth . . . and the actual cause of her disease. Upon regaining consciousness, Anita found that her condition had improved so rapidly that she was released from the hospital within weeks—without a trace of cancer in her body! Within this enhanced e-book, Anita recounts—in words and on video—stories of her childhood in Hong Kong, her challenge to establish her career and find true love, as well as how she eventually ended up in that hospital bed where she defied all medical knowledge. In "Dying to Be Me," Anita Freely shares all she has learned about illness, healing, fear, "being love," and the true magnificence of each and every human being!

Meet Jocelyn! She likes soccer and dinosaurs. She is also a leukemia survivor. Jocelyn is real and so are her experiences. Learn about her life in this illustrated narrative nonfiction picture book for elementary students. Kids are naturally curious about differences. Jocelyn sheds light on her on her life fighting childhood cancer, with the help of experienced children's author Mari Schuh. Jocelyn is not defined by leukemia, but she still has side effects from chemotherapy. Let Jocelyn tell you a little about her life. Colorful, realistic illustrations and a dyslexic-friendly font promote accessibility. Includes tips for kids about interacting with someone who has leukemia.

When Eric Wendel was diagnosed with acute lymphoblastic leukemia in 1966, the survival rate was 10 percent. Today, it is 90 percent. Even as politicians call for a "Cancer Moonshot," this accomplishment remains a pinnacle in cancer research. The author’s daughter, then a medical student at Georgetown Medical School, told her father about this amazing success story. Tim Wendel soon discovered that many of the doctors at the forefront of this effort cared for his brother at Roswell Park in Buffalo, New York. Wendel went in search of this extraordinary group, interviewing Lucius Sinks, James Holland, Donald Pinkel, and others in the field. If there were a Mount Rushmore for cancer research, they would be on it. Despite being ostracized by their medical peers, these doctors developed modern-day chemotherapy practices and invented the blood centrifuge machine, helping thousands of children live longer lives. Part family memoir and part medical narrative, Cancer Crossings explores how the Wendel family found the courage to move ahead with their lives. They learned to sail on Lake Ontario, cruising across miles of open water together, even as the campaign against cancer changed their lives forever.

This book maintains a broad range of appeal to individuals and families who have experienced catastrophic struggle, illness or torment on any level, but primarily to readers with an appreciation for stories of spiritual growth and personal reconciliation. It has been posited as a combination of "Man's Search for Meaning" and "Unbroken," which is a testament to both the beautiful writing and dramatic story about the plight of a loving son and brother that is both staggering in scope and mesmerizing in tone. It has received tremendous praise from authors in the faith community (Richard Roar and Wm. Paul Young), non-fiction adventure (Hampton Sides) and the medical community (Dr. William Evans, CEO St. Jude Children's Hospital). Possibilities is testament to the fact that some stories can be both brutal and beautiful; but few stories have ever been more powerful.