Genetic Responsibility In Germany And Israel

Prenatal diagnosis, especially noninvasive prenatal testing (NIPT), has changed the experience of pregnancy, prenatal care and responsibilities in Israel and Germany in different ways. These differences reflect the countries' historical legacies, medico-legal policies, normative and cultural identities. Building on this observation, the contributors of this book present conversations between leading scholars from Israel and Germany based on an empirical bioethical perspective, analyses about the reshaping of 'life' by biomedicine, and philosophical reflections on socio-cultural claims and epistemic horizons of responsibilities. Practices and discussions of reproductive medicine transform the concepts of responsibility and irresponsibility.

This book presents the findings of a study into the social shaping of reproductive genetics in Germany and Israel. The study reveals dramatic differences between German and Israeli societies in addressing the question of a life (un)worthy of living. A close analysis of the ways that these two societies handle the balance between the quality and sanctity of life illuminates controversies over reproductive genetics in an original and provocative way.

This book is a comprehensive, empirically-grounded exploration of the relationship between bioethics, culture, and the perspective of being affected. It provides a new outlook on how complex “bioethical” issues become questions of everyday life. The authors focus on two contexts, genetic testing and end-of-life care, to locate and demonstrate emerging themes of responsibility, such as self-responsibility, responsibility for kin, and the responsibility of society. Within these themes, the duty to know versus the right not to know one's genetic fate (in the context of genetic testing), or the sanctity of life versus self-determination (in the context of end of life care) are identified as culturally embedded dilemmas that are very much relevant for lay persons. Furthermore, cultural factors such as religion, history, utopian and dystopian views of biomedical technologies, outlooks on the body and on health/illness, and citizenship are examined. Health issues are increasingly becoming a question of assessing risk and responsibility: How can we better prepare ourselves for the future? We all make such assessments in a way that combines personal inclinations, professional recommendations, and cultural framings. There is still much to be learned about the interplay between these three dimensions.

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Recent debate about the ethical and regulatory dimensions of developments in genetics has sidelined societal and cultural aspects, which arguably are indispensable for a nuanced understanding of the complexities of the topic. Regulatory and ethical debates benefit from taking seriously this ’third dimension’ of culture, which often determines the configurations and limits of the space within which scientific, ethical and legal debate can take place. To fill this gap, this volume brings together contributions exploring the mutual relationships between genetics, markets, societies and identities in genetics and genomics. It draws upon the recent transdisciplinary debate on how socio-cultural factors influence understandings of ’genetics2.0' and shows how individual and collective identities are challenged or reinforced by cultural meanings and practices of genetics. This book will become a standard reference for everyone seeking to make sense of the controversies and shifts in the field of genetics in the second decade of the twenty-first century.

A collection of studies in bioethics and society that goes beyond conventional medical ethics and suggests political, socio-legal, and empirical analysis.

In health and medicine, imagining the future is essential in giving meaning to the past and the present and for propelling people into action. This is true not only at the level of individuals as they envision and carry out everyday activities and long-term plans but also for institutional practices framed by and unfolding within various socio-political ecologies and transfigurations. Hope and uncertainty are critical affective and knowledge-related modalities of such imaginations and assume vital meanings in policing, managing, and experiencing health, illness, and well-being. This volume brings together contributions from medical anthropologists who address this theme across various medical spheres, including the pragmatics of hope and uncertainty, the techno-sphere, health management, and individual and socially distributed emotions.

Since the defeat of the Nazi Third Reich and the end of its horrific eugenics policies, battles over the politics of life, sex, and death have continued and evolved. Dagmar Herzog documents how reproductive rights and disability rights, both latecomers to the postwar human rights canon, came to be seen as competing—with unexpected consequences. Bringing together the latest findings in Holocaust studies, the history of religion, and the history of sexuality in postwar—and now also postcommunist—Europe, Unlearning Eugenics shows how central the controversies over sexuality, reproduction, and disability have been to broader processes of secularization and religious renewal. Herzog also restores to the historical record a revelatory array of activists: from Catholic and Protestant theologians who defended abortion rights in the 1960s–70s to historians in the 1980s–90s who uncovered the long-suppressed connections between the mass murder of the disabled and the Holocaust of European Jewry; from feminists involved in the militant "cripple movement" of the 1980s to lawyers working for right-wing NGOs in the 2000s; and from a handful of pioneers in the 1940s–60s committed to living in intentional community with individuals with cognitive disability to present-day disability self-advocates.

Sex and gender in biomedicine are innovative research concepts of theoretical and clinical medicine that enable a better understanding of health and disease, evidence-based knowledge, effective therapies, and better health outcomes for women and men. Gender Medicine stimulates new ways of doing research: that is to consider sex and gender at all levels of research, from basic research into gene polymorphisms to health behaviour. New research questions have been put forward that focus not on differences per se but on the development of differences. In this book, contributions from the field of neuroscience, addiction research, and organ transplantation exemplify concepts, approaches, methods and results in the field.