Commitment To Public Involvement

The dual problems of securing access to health care and containing the increasing costs of health care delivery bring the issue of prioritization to the forefront of health care debates. This study discusses the implications and consequences of allocating priorities to certain groups.

Evaluation researchers are tasked with providing the evidence to guide programme building and to assess its outcomes. As such, they labour under the highest expectations - bringing independence and objectivity to policy making. They face huge challenges, given the complexity of modern interventions and the politicised backdrop to all of their investigations. They have responded with a huge portfolio of research techniques and, through their professional associations, have set up schemes to establish standards for evaluative inquiry and to accredit evaluation practitioners. A big question remains. Has this monumental effort produced a progressive, cumulative and authoritative body of knowledge that we might think of as evaluation science? This is the question addressed by Ray Pawson in this sequel to Realistic Evaluation and Evidence-based Policy. In answer, he provides a detailed blueprint for an evaluation science based on realist principles.

Federal agencies have taken steps to include the public in a wide range of environmental decisions. Although some form of public participation is often required by law, agencies usually have broad discretion about the extent of that involvement. Approaches vary widely, from holding public information-gathering meetings to forming advisory groups to actively including citizens in making and implementing decisions. Proponents of public participation argue that those who must live with the outcome of an environmental decision should have some influence on it. Critics maintain that public participation slows decision making and can lower its quality by including people unfamiliar with the science involved. This book concludes that, when done correctly, public participation improves the quality of federal agencies' decisions about the environment. Well-managed public involvement also increases the legitimacy of decisions in the eyes of those affected by them, which makes it more likely that the decisions will be implemented effectively. This book recommends that agencies recognize public participation as valuable to their objectives, not just as a formality required by the law. It details principles and approaches agencies can use to successfully involve the public.

This book examines the key issues for consideration when evaluating information, consultation and public participation.

Public involvement programs provide transportation agencies and the public with a means for exchanging information about planning and project development activities. When effective, public involvement activities enable the public to participate in transportation decision making. Transportation professionals need to measure the impact of public involvement activities to ensure that they are successful and an efficient use of public resources. In addition, repeated measurement can track an agency’s performance over time, demonstrating ongoing commitment to public involvement and increasing overall accountability in the transportation decision-making process. This report presents a field-validated and practitioner-ready toolkit for measuring the effectiveness of public involvement activities. The toolkit is designed to collect feedback from the public on several indicators of effectiveness and to compare that feedback with the agency’s own perceptions. The combined responses can then be used to calculate scores for each indicator and an overall effectiveness index. This allows for systematic comparison of the effectiveness of different public involvement strategies over time.

The idea of person-centred health systems is widely advocated in political and policy declarations to better address health system challenges. A person-centred approach is advocated on political, ethical and instrumental grounds and believed to benefit service users, health professionals and the health system more broadly. However, there is continuing debate about the strategies that are available and effective to promote and implement 'person-centred' approaches. This book brings together the world's leading experts in the field to present the evidence base and analyse current challenges and issues. It examines 'person-centredness' from the different roles people take in health systems, as individual service users, care managers, taxpayers or active citizens. The evidence presented will not only provide invaluable policy advice to practitioners and policymakers working on the design and implementation of person-centred health systems but will also be an excellent resource for academics and graduate students researching health systems in Europe. This title is available as Open Access on Cambridge Core.

Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.

Researching the People's Health examines the different ways in which needs are assessed and health care is organized, prioritized and delivered in circumstances of rapid change in patterns of health and illness. The book also addresses the issue of relationships between lay and expert knowledge.