Chasing The Cure

LOS ANGELES TIMES AND PUBLISHERS WEEKLY BESTSELLER • The powerful memoir of a young doctor and former college athlete diagnosed with a rare disease who spearheaded the search for a cure—and became a champion for a new approach to medical research. “A wonderful and moving chronicle of a doctor’s relentless pursuit, this book serves both patients and physicians in demystifying the science that lies behind medicine.”—Siddhartha Mukherjee, New York Times bestselling author of The Emperor of All Maladies and The Gene David Fajgenbaum, a former Georgetown quarterback, was nicknamed the Beast in medical school, where he was also known for his unmatched mental stamina. But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime. Miraculously, Fajgenbaum survived—only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself. More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide. Praise for Chasing My Cure “A page-turning chronicle of living, nearly dying, and discovering what it really means to be invincible in hope.”—Angela Duckworth, #1 New York Times bestselling author of Grit “[A] remarkable memoir . . . Fajgenbaum writes lucidly and movingly . . . Fajgenbaum’s stirring account of his illness will inspire readers.”—Publishers Weekly

This book tells the story of the thousands of “health seekers” who journeyed to New Mexico from 1880 to 1940 seeking a cure for tuberculosis (TB), the leading killer in the United States at the time. By 1920 such health seekers represented an estimated 10 percent of New Mexico’s population. The influx of “lungers” as they were called—many of whom remained in New Mexico—would play a critical role in New Mexico’s struggle for statehood and in its growth. Nearly sixty sanatoriums were established around the state, laying the groundwork for the state’s current health-care system. Among New Mexico’s prominent lungers were artists Will Shuster and Carlos Vierra, who “came to heal and stayed to paint.” Bronson Cutting, brought to Santa Fe on a stretcher in 1910, became the influential publisher of the Santa Fe New Mexican and a powerful U.S Senator. Others included William R. Lovelace and Edgar T. Lassetter, founders of the Lovelace Clinic, as well as Senator Clinton P. Anderson, poet Alice Corbin Henderson, architect John Gaw Meem, aviator Katherine Stinson, and Dorothy McKibben, gatekeeper for the Manhattan Project. New Mexico’s most infamous outlaw, Billy the Kid, first arrived in New Mexico when his mother, Catherine Antrim, sought treatment in Silver City.

This is a story about a woman who, in the prime of her life, is diagnosed with an autoimmune disease called scleroderma. Doris, an upbeat and optimistic person, always looked on the bright side of life. That was about to change. A strange and mysterious disease was waiting to wreak havoc with her life. Nothing prepared her for this life-altering experience. Follow her courageous journey in dealing with an autoimmune disease and sifting through the maze of doctors and treatments.

LILLY STONE is a twelve year old medical prodigy who takes after her father and uses every opportunity to learn more about the world of medicine. Desperate to treat patients of her own, Lilly meets Andre on her way home from school and finds the opportunity she has longed for. Noticing that Andre had more than a minor injury, and a family who didn't trust doctors, Lilly works to bridge the gap and treat the boy while searching for the root cause of his poor health. Chasing A Cure - that's Lilly Stone's dream. GREG PLAYER IS A DEDICATED FAMILY PHYSICIAN IN WILMINGTON, NORTH CAROLINA. HAVING TREATED PATIENTS FOR OVER TWENTY YEARS, INCLUDING HUNDREDS OF DIABETIC PATIENTS, DR. PLAYER FINDS A PARTICULAR INTEREST IN THE DOCTOR AND PATIENT RELATIONSHIP. HE APPRECIATES THE SCIENCE AND ART OF MEDICINE, AND IS EXCITED TO SHARE THE MEDICAL WORLD WITH YOUNG READERS EVERYWHERE.

Can energy healing cure cancer? You be the judge! Virtually all Eastern healing practices are premised on a belief in the existence of an invisible energy system; the Western world is alone in rejecting that view in favour of a materialistic, technological, drugbased medical system. While the accomplishments of the Western system are undeniable, the general public is well ahead of Western medical professionals in accepting and seeking out alternative health methods. The only thing missing has been a clinching argument to bridge the gap between Eastern tradition and Western skepticism- until now. Chasing the Cure tells the story of how Dr. Bengston discovered and developed his healing talent; how he pursued it through laboratory research despite the heated skepticism of scientists who dismissed his results as "too good to be true;" and how he began to gather high-level support. It also contains a teaching supplement, describing Dr. Bengston's healing methods. Chasing the Cure Endorsements: "Bengston's research on the healing of cancer in mice is an eye-opener, both for its direct implications and for what it says about the difficulty of gaining acceptance for unconventional results no matter how well documented. His methodology is clear, his results are unambiguous, and several experiments strongly suggest that his healing technique is teachable. Whether you're a healer, a doctor, a biologist, or simply an interested citizen, you owe it to yourself to find out what Bill has been learning over the last two decades."-York Dobyns, Princeton University physicist "Bill Bengston has all the creds and talent to make it big-time in mainstream academia, but he also has the guts to stick to what he sees and knows, and tell us about it, even if it is way out of the box. Here we have his very exciting adventures in healing with decidedly anomalous results. It is to Bill's great credit that he tells it like it is and sustains the contact with this mind-bending material so that it is neither distorted, ignored, or blown out of proportion. Really excellent work!"-Richard A. Blasband, M.D., formerly of the faculty of the Department of Psychiatry at Yale Medical School "Professor William Bengston is shaking the foundations of medical research. What is at stake is the entire clinical trial process. In carefully carried out experiments Professor Bengston showed dramatic healing of cancer tumors in mice using energy medicine. By tracing the path of healing intention, he has found that it follows surprising turns and is not easy to control. The simple model of a controlled study does not work in medicine. Bengston's story is one of breakthrough discoveries and a fascinating tale that is not yet complete."-Garret Moddel, professor of electrical engineering, Department of Electrical, Computer and Energy Engineering, University of Colorado. "Bill Bengston is a ...criminologist, sociologist, statistician, college professor, cancer researcher, energy healer. An expert in all these fields! I have been in Bill's orbit observing him engage others in rich dialogue. The consistent effect of his thesis of life challenges even brilliant minds to rethink their foundational assumptions. Bill's mesmerizing memoir reads like a novel."-Francesca McCartney, Ph.D., founder and president, Energy Medicine University , and author of Body of Health: The New Science of Intuition Medicine .

The New York Times Bestseller What if everything you think you know about addiction is wrong? Johann Hari's journey into the heart of the war on drugs led him to ask this question--and to write the book that gave rise to his viral TED talk, viewed more than 62 million times, and inspired the feature film The United States vs. Billie Holiday and the documentary series The Fix. One of Johann Hari's earliest memories is of trying to wake up one of his relatives and not being able to. As he grew older, he realized he had addiction in his family. Confused, not knowing what to do, he set out and traveled over 30,000 miles over three years to discover what really causes addiction--and what really solves it. He uncovered a range of remarkable human stories--of how the war on drugs began with Billie Holiday, the great jazz singer, being stalked and killed by a racist policeman; of the scientist who discovered the surprising key to addiction; and of the countries that ended their own war on drugs--with extraordinary results. Chasing the Scream is the story of a life-changing journey that transformed the addiction debate internationally--and showed the world that the opposite of addiction is connection.

Chasing the Invisible combines the suspense of a spy novel with the education and scientific insight of a medical mystery thriller, all wrapped in a dramatic business story. In addition to revealing the detective work of medicine and its impact on physicians and patients, Chasing the Invisible features a colorful cast of Wall Street investment bankers, venture capitalists and the titans of a giant multinational company out to acquire the missing puzzle piece necessary to ensure the next phase of life-saving innovation. Dr. Tom Grogan navigated his way through all those worlds to fulfill his vision. He ultimately transformed his classic biomedical start-up company--born as a diagram on a piece of paper and a jerry-rigged prototype built in his garage--into a successful multi-billion-dollar worldwide enterprise, following its acquisition by a Swiss pharmaceutical giant. Today his invention of an automated cancer diagnostics device that helps personalize the detection of cancer and enables doctors to treat it more effectively is transforming medical practice throughout the world. Whether you're interested in learning about science and medicine, or about entrepreneurship and how to create an exciting and dynamic leadership culture, or even if you're just looking for a good read with wit and humor, Chasing the Invisible is worth picking up. If you've ever chased a dream bigger than yourself; if you've ever been rejected, impeded, accused, sued, held up, knocked down, flat broke, far flung, or near death with cancer, and you didn't quit, this book is for you.

Newbery Honor–winning author Gennifer Choldenko deftly combines humor, tragedy, fascinating historical detail, and a medical mystery in this exuberant new novel. San Francisco, 1900. The Gilded Age. A fantastic time to be alive for lots of people . . . but not thirteen-year-old Lizzie Kennedy, stuck at Miss Barstow’s snobby school for girls. Lizzie’s secret passion is science, an unsuitable subject for finishing-school girls. Lizzie lives to go on house calls with her physician father. On those visits to his patients, she discovers a hidden dark side of the city—a side that’s full of secrets, rats, and rumors of the plague. The newspapers, her powerful uncle, and her beloved papa all deny that the plague has reached San Francisco. So why is the heart of the city under quarantine? Why are angry mobs trying to burn Chinatown to the ground? Why is Noah, the Chinese cook’s son, suddenly making Lizzie question everything she has known to be true? Ignoring the rules of race and class, Lizzie and Noah must put the pieces together in a heart-stopping race to save the people they love. Winner of a Los Angeles Public Library FOCAL (Friends of Children and Literature) Award Nominated for: Pennsylvania Young Reader’s Choice Awards Tennessee Volunteer State Book Award (Middle School division) Missouri Association of School Librarians (MASL) Readers Award California Library Association’s Beatty Award, Eureka List

Applying the principles of human-centered design to real-world health care challenges, from drug packaging to early detection of breast cancer. This book makes a case for applying the principles of design thinking to real-world health care challenges. As health care systems around the globe struggle to expand access, improve outcomes, and control costs, Health Design Thinking offers a human-centered approach for designing health care products and services, with examples and case studies that range from drug packaging and exam rooms to internet-connected devices for early detection of breast cancer. Written by leaders in the field—Bon Ku, a physician and founder of the innovative Health Design Lab at Sidney Kimmel Medical College, and Ellen Lupton, an award-winning graphic designer and curator at Cooper Hewitt Smithsonian Design Museum—the book outlines the fundamentals of design thinking and highlights important products, prototypes, and research in health design. Health design thinking uses play and experimentation rather than a rigid methodology. It draws on interviews, observations, diagrams, storytelling, physical models, and role playing; design teams focus not on technology but on problems faced by patients and clinicians. The book's diverse case studies show health design thinking in action. These include the development of PillPack, which frames prescription drug delivery in terms of user experience design; a credit card–size device that allows patients to generate their own electrocardiograms; and improved emergency room signage. Drawings, photographs, storyboards, and other visualizations accompany the case studies. Copublished with Cooper Hewitt, Smithsonian Design Museum

When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen. In 1998, 15-month-old Megan and 4-month-old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. The Crowleys were told to take their children home and "enjoy their short time together...there is nothing that can be done." Raised in a blue-collar neighborhood in northern New Jersey, John Crowley, a recent Harvard MBA graduate working at Bristol-Myers Squibb, was just beginning to taste success in corporate America. But now he was absolutely determined to find a treatment to save his children's lives. Frustrated with the pace of Pompe research, Crowley walked away from the corporate world at the age of 31 to help co-found a start-up biotech company, focused exclusively on producing a lifesaving medicine. In Chasing Miracles, John Crowley writes from his heart about how he and his wife set out to do "whatever it takes" against phenomenal odds to help Megan and Patrick first to survive, and then to thrive—and to keep their family, including oldest son John Jr., together and their marriage strong. He tells about learning to ask for help, about not losing faith, about coping with adversity, about the generosity and kindness of others, and, most importantly, about what it means to never, never quit. As Aileen Crowley writes in her foreword, "This book is our family's attempt to share much of what we have learned, especially from our children, who have taught us more about life and love than we have ever taught them."